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Patient Guidelines
Remember that anyone in the world can possibly read what you write, keep the tone positive, and do not solicite donations or money. Do not try to add links to commercial sites. Protect your identity. Never use your last name, school name, or other identifiable information. You should already know everyone on your site. If a stranger contacts you, ignore it or report it to the administrator. Only people invited by you are allowed on the site, so do not be afraid to report a violation.
Our policies in a nut shell:
If you belong here we will do everthing we can to protect you and leave you alone.
If you don't belong here, you are not entitled to any protection from us.
Our General policies
We refer to the person who is the focus of your page as the "patient" no matter the reason they are using this site. We refer to the adult who is helping the patient with this site as the "adult". Anyonee who is here in support of the patient is referred to as a "visitor". This site is free for all users: patients or visitors. There is no obligation to donate money to this site or any sponsor site or any patient's charity to use this site. If anyone solicites you for a donation, report this violation to us. No users may attract donations or contributions or sell anything on this site.
In addition to the visitor policies patients and their representatives must follow these guidelines. The purpose of this board is to help friends and family feel connected to the progress of the patient. We ask that patients or a representative make regular updates for the visitors. Even a little note will be appreciated. Also, please allow the patient access to their messages of encouragement. This can be done by printing out pages from the guest book, regularly logging in with the patient to see the support offered here, or reading the messages to the patient.
This is a private community. The patient or adult should know everyone who posts a message - not just online but in real life. Solicitation, proposals, or any form of communication not directed at encouraging the patient is forbidden and should be reported immediately to the administrator. No one should try to get you to visit their web site or email or call them that you do not know. For the protection of all members, please report anything suspicious.
We insist on honesty. Do not use these pages for personal gain. Only register if you genuinely have a child or are a child has will be away from friends for an extended period of time due to illness or other medical conditions. This page is not a general interest web site, like myspace or xanga. If you are looking for new friends, please visit those sites.
You may include a link to your favorite charity or contact information for donations, but the focus of this site is to promote a sense of community, not fundraising.
We ask you some personal information in the application below. The reason we ask for the patient's birthday is so we can promote it (that is a future project) to your visitors and because this page is for young people. There are other sites geared toward adults. The reason we ask about the adult moderating the page, a security question, and the state you live in is help identify you in the future if there is any question about who is who. We don't have the resources or ability to verify identity and accuracy of anything said by visitors or patients. We will either trust the adult moderator or may override their decision and erase the message in question.
Page names must not contain a last name. If you use the patient's first name, you must include something else, a number, another word, or initials to make it difficult to guess. Do not include your city in the name. Make it easy for your visitors to remember but unique enough that it cannot be guessed.
We reserve the right to ammend these policies as we need. At any time if you do not agree with the current policies, you may have your page removed or your account deactivated. You must check the box at the bottom to indicate that you agree with these policies.
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© 2006-2008 Power 2 Believe - Keeping Friends Connected
Web Design by www.DancingTreesWeb.com
All messages written on this or any Power 2 Believe page were written by the patient, parent, representative, or other parties. They are solely responsible for the content. Nothing on this page is verified to be true or accurate, including whether anyone is or was actually a patient anywhere. Statements made do not necessarily reflect the opinions of Power 2 Believe or the sponsors. Nothing on this page should be construed as medical advice or be used for medical treatment.
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